Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-Being, and Health Care Use: The Care Ecosystem Randomized Clinical Trial

Authors
Katherine L. Possin
Jennifer J. Merrilees
Sarah Dulaney
Stephen J. Bonasera
Winston Chiong
Kirby Lee
Sarah M. Hooper
Isabel Elaine Allen
Tamara Braley
Alissa Bernstein
Talita D. Rosa
Krista Harrison
Hailey Begert-Hellings
John Kornak
James G. Kahn
Georges Naasan
Serggio Lanata
Amy M. Clark
Anna Chodos
Rosalie Gearhart
Christine Ritchie
Bruce L. Miller
Peer-Reviewed Article
December 2019

Headline

Telephone- and web-based dementia care provided through centralized hubs and delivered by an interdisciplinary team can improve outcomes for people with dementia and their caregivers.

Context

People with dementia and their caregivers often have to navigate complex care transitions, multiple medications, and siloed care systems and resources to meet dementia-related needs. Dementia progression is associated with high levels of caregiver burden and poor patient quality of life, which can increase the risk of unnecessary acute care use and premature placement in long-term care. This randomized clinical trial tests the effects of the Care Ecosystem, a telephone- and web-based program that provides education, support, and care coordination for people with dementia and their caregivers through an interdisciplinary team consisting of a care team navigator and dementia expert providers (advanced-practice nurse, social worker, and pharmacist). It was piloted in two care systems that served as “hubs” – the University of California, San Francisco (UCSF) and the University of Nebraska Medical Center (UNMC).

Findings

Compared with usual care, the Care Ecosystem significantly improved the quality of life and reduced the number of emergency department visits for people with dementia, but did not have an effect on hospitalization or ambulance use. For caregivers, the program was associated with improvements in confidence in performing caregiving tasks at six months and decreases in caregiver burden and depression at six and 12 months.

Takeaways

Health systems and payers can improve outcomes for people with dementia and their caregivers by implementing the Care Ecosystem model. For more detailed implementation information, see the Care Ecosystem Toolkit.

Posted to The Playbook on
Level of Evidence
Strong
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